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Multiple Myeloma Diagnosis-What can a MM cancer coach do for me?

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Multiple Myeloma Cancer Coaching Enhances Patient Decision-making answering questions from a long-term MM survivor’s point-of-view-

A cancer diagnosis is difficult. A diagnosis of incurable cancer called multiple myeloma is terrifying.  Trying to learn about your cancer myeloma diagnosis,  prognosis, therapies, potential side effects, caregiver support and more, is a huge challenge. MM Cancer Coaching can help.

I know. I am both a Multiple Myeloma patient and Multiple Myeloma Cancer Coach.

Conventional or traditional cancer therapy is expensive and fraught with side effects. According to the American Cancer Society Multiple Myeloma is an incurable blood cancer with an average five-year survival rate of 49%. Your oncologist probably told you that myeloma diagnosis is incurable but very treatable. 

Your first challenge then, after trying to wrap your head around your myeloma diagnosis, is to understand the long and growing list of FDA approved chemotherapy regimens for the treatment of multiple myeloma.

Triplet versus doublet induction therapy, stem-cell harvesting, autologous stem cell transplants, the pros, and cons…it can be overwhelming.

The rise of e-patients has given cancer patients, survivors, and caregivers the ability to learn, make better decisions and take control of their health.

PeopleBeatingCancer is an online cancer community fortified by evidence-based research and moderation. I can apply my 20+ years as a cancer patient and survivor and 10 years as a cancer coach to your needs.

Keep in mind that “In cancer alone, 150,000 studies are published annually.” Please don’t expect your oncologist to keep up on the world of cancer care beyond his or her specialty.

Whether you want a different kind of “second opinion,” you are newly diagnosed, have just finished induction-therapy, have just come out of remission, or you want to learn about palliative or hospice care, you may want to talk to a long-term cancer survivor who has been researching cancer issues since 1997.

Thank you,

David Emerson

  • MM Survivor
  • MM Cancer Coach
  • Director PeopleBeatingCancer

Recommended Reading:

The contribution of cytotoxic chemotherapy to 5-year survival in adult malignancies

“Results–The overall contribution of curative and adjuvant cytotoxic chemotherapy to 5-year survival in adults was estimated to be 2.3% in Australia and 2.1% in the USA.

Conclusion-As the 5-year relative survival rate for cancer in Australia is now over 60%, it is clear that cytotoxic chemotherapy only makes a minor contribution to cancer survival.”

After a Diagnosis, Someone to Help Point the Way

“WHEN Kathleen Henry’s uncle was told he had bladder cancer in May, she knew she needed help. Even though Ms. Henry has a nursing degree, she worried about deciphering treatment options and picking the best hospital for her uncle’s care.”

12 million Americans misdiagnosed each year

“For the paper, the researchers analyzed data from three prior studies related to diagnosis and follow-up visits. One of the studies examined the rates of misdiagnosis
in primary care settings, while two of the studies looked at the rates of colorectal and lung cancer screenings and subsequent diagnoses…”

Here are five of the most important issues for cancer patients and caregivers to identify and understand.

1) Cancer Terminology.

2) Cancer Specialists.

3) Therapy side effects identification and management.

4) How do cancer survivors stay in remission?

5) Develop a cancer survivorship plan-

 

 

Leave a Comment:

9 comments
Nutrition- Fast, Delicious Antioxidant Foods to Fight Multiple Myeloma - PeopleBeatingCancer says 4 years ago

[…] “What can a MM cancer coach do for me? Multiple Myeloma Cancer Coaching […]

Reply
Curating Multiple Myeloma Content on the Internet- PeopleBeatingCancer - PeopleBeatingCancer says 4 years ago

[…] “What can a MM cancer coach do for me? Multiple Myeloma Cancer Coaching […]

Reply
Tonia Garraway says 6 years ago

I was diagnosed with multiple myeloma and was told I have to start chemo ASAP that’s in September 2016. I walk out the doctor office and never return. I was taking some supplement I have the list to show u if u wish. I also every now and then does the oxygen therapy. Currently I’m lost not doing anything. How can I contact you please
I can be reach 646-320-3792
Thanks
Tonia

Reply
    David Emerson says 6 years ago

    Hi Tonia-

    Thanks very much for reaching out to me. Yes, I would like to know what you supplement with. To contact me please email me at
    David.PeopleBeatingCancer@gmail.com.

    Thanks,

    David Emerson

    Reply
Ronald says 7 years ago

Hi David, I have been diagnosed with MM and the ONC wants to start a series of Bortezomid injections. I don’t know at what stage I am at, but I do know that I am skeptical about these injections mostly the side effects. I am wondering if I really have to go the injection portion. Any Ideas?

Reply
    David Emerson says 7 years ago

    Hi Ronald-

    I am sorry to read of your MM diagnosis. Your stage and symptoms at diagnosis dictate your therapy plan. In other words, I can’t talk about the pros and cons of velcade aka bortezomib without knowing your stage and symptoms (bone damage, kidney damage, anemia, etc.). Yes, there are a host of evidence-based, non-toxic MM therapies. Many that work synergistically with velcade and can reduce your risk of collateral damage aka side effects. However these therapies work much more slowly than conventional chemotherapy such as velcade/bortezomib.

    David Emerson
    MM survivor
    MM cancer coach

    Reply
Johannes V. Reynisson says 9 years ago

Iceland

Colon Cancer Awareness

Starting January 15th Blái Naglinn (the Blue Nail )will send all those who reach the age of 50 a birthday present: A screening test for blood in the stool.
About 4000 tests will sent this year. The tests will be sent out monthly. This is the first time that an entire nation in the age group of 50 years is given a colon cancer screening.

The project is for three years. We will set up the homepage krabbameinsleit.is which will be activated 01.02.2015. There, participants can register and record the outcome, whether there is blood in the stool or not. Replies can not be traced to any individual.

In Iceland, about 130 people are annually diagnosed with colon cancer, more than 50 die.

With preventive actions like these, mortality due to colon cancer can be significantly reduced.
Facebook. Bláinaglinn

Reply
louis pearson says 9 years ago

im going to oncologist tomorrow– hoped for some answers and questions

Reply
    David Emerson says 9 years ago

    Hi Louis-
    Why are you seeing an oncologist tomorrow? Have you been tested for some form of cancer? Are you thinking you may have cancer? Either way I can offer questions to ask the onc or offer you answers to questions you may have. If you are discussing test results tomorrow, please ask the following-

    1) what is the specific diagnosis? What cancer, what stage?
    2) What prognosis is this oncologist offering? Is this diagnosis life-threatening?
    3) What therapy plan is the onc suggesting? Surgery? Chemo? Radiation? Some combination of these?
    Louis, please reply with whatever answers your onc offered to you. Let’s discuss.
    thanks
    David Emerson
    PeopleBeatingCancer.org

    Reply
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